Showing posts with label personal. Show all posts
Showing posts with label personal. Show all posts

Monday, May 7, 2012

You Can Have Broadway, But Make Mine Heaven

Part One

Our family has been on a strange odyssey over the past two years - or maybe more. Our son has always been a high honor roll student (95 average and above) and has slipped academically. He has complained about not liking school more frequently and his grades have dropped in classes that he has always found to be quite easy for him. We've chalked it up to the changes that come with being a teenager preparing for entrance into high school. Our standard for school performance has always been teacher comments. If the teachers say that he is getting work done on time and is doing his best, shows respect in the classroom and actively participates, our requirements as parents have been met. In my heart I've known that he can do much better, but made myself step back and do my best to not add to the pressure he has appeared to be under. When he was younger, we would often get calls from other parents at night. They would want to ask Alex what certain assignments were because their child forgot to write something down or the child could not remember how to do something.

Being in a small Catholic school, staffing can be a problem. Catholic school teachers are quite often paid half the salary they would make at a public school. In fourth grade, he had three different teachers. The first was in over her head with state testing and left after a couple of months if memory serves correctly. The second was there for a few months until a better job came along. The third started just in time to start preparing the children for the state math exams and it became amply clear that no math had been taught by the first two teachers. Our son finally told us that neither of them "liked math so they didn't want to teach it." Our son who had a 97 in math the previous year was suddenly drowning along with most of his classmates. The new teacher, Mrs. A, was a Catholic-in-name-only woman (was so ill-equipped to teach fourth grade religion out of a book, that another teacher had to do it) who had just finished her teaching certification. She was not lacking in enthusiasm, but clearly missing was the same educational standards we have come to expect from previous years. When spring came, our focus was on getting him caught up in math to the best of our ability and that all would be fine next year. Fourth grade would be a wasted year, but survivable. A hiccup.

In fifth grade, we didn't even know who would teach the class until school was about to start. Once again, we were facing staffing changes and were less optimistic due to our experience the previous year. To our relief, Ms. B did a good enough job with the children. Unfortunately, the problem with math the previous year continued on. The majority of the class was still behind and Ms. B sought out the help of a teacher who had a great talent for teaching math. Alex had always received high marks in all classes and was now receiving markedly lower grades in math only. From his perspective, it was his fault and he was unable to do well in the subject. The marking periods that year wavered between honor roll and merit roll. The teacher began making comments to Alex about his need for improved self-esteem. She made no such comments to me and I was uncertain of her professionalism due to her befriending students instead of maintaining a more teacher-student relationship. He had never faced difficulty in education until this point, and his perfectionist tendencies were unshakable. We continued to go with the flow.

In sixth grade, he was blessed to have a religious sister for a teacher. Sister C had a rather dour personality and ran a tight ship, but he excelled in everything except for math. It was our running joke that year with Alex (we had to laugh and try to keep it light) that with a small class of just ten or so children that year, he never got the Student of the Month award. We told him that we'd give him one in July AND August. It just didn't make an iota of difference to us as long as he was doing his best in school. In his mind, he had become a bad kid because his struggle with math continued (when he received extra help, he would be caught up and be doing fine - only to slip back off again) and the only negative comment we ever received was that his locker was disorganized. All other comments indicated a pleasant boy who was respectful to everyone, and did well in all of his classes - except for math. The fact that he never received the dreaded Student of the Month award coupled with his struggles with math began to show up in murmurs among classmates. A couple of girls in particular began to ask him what had happened to him. He used to be good and now he wasn't - at least in their minds. A crack that had been barely visible before began to widen.

In hindsight, seventh and eighth grades blend together in our minds because the same teacher was homeroom teacher for both. Mrs. D requested to be the homeroom teacher for the same class in eighth grade so there was no escaping what turned out to be two years of the attempted dismantling my son, fiber by fiber. I won't separate the two years because year two was just a continuation of year one. Calls from the principal became more prevalent, but to this day I'm not clear as to what the purpose of the calls actually was. Alex's math grade dropped to as low as 76 and rose as high as 90 for a marking period, and the math teacher continued to be the one who had assisted the fifth grade teacher. She had told me herself that math just wasn't Alex's strong suit but I refuse to believe that. I'm not a parent in denial. This is the same kid who can do math facts in his head much more quickly than I can. When I help him with math problems, I struggle to find the way to solve the problem. When I help him unravel the formula, he kicks into high gear and can finish the entire problem quite easily. His confidence was deflated so long ago that he has convinced himself that he cannot do math and never will be able to.

I've digressed. Back to Mrs. D and the calls from the principal, Mr. E. Alex began to talk about a few girls being a real problem in the class. One of the girls had come to the school from another area of the state. Her family lived in a large estate home (compared to the rest of the community) and threw huge parties for their kids. On the girl's birthday one year, a limousine picked up the class. After the first party as a newer student, all parties included the majority of the class being invited except for Alex, and two other children. This girl, F, became a ring leader in the classroom and other girls began to follow her lead. More and more the girls in the class, quite often with F's support and prodding, began to pick at Alex like vultures. Three of the most laughable calls I've received from Mr. E:

  • F & G came down to the office and told me that Alex didn't take notes in Social Studies today. When asked, the Mr. E. admitted that Alex's grade is in the upper 90s in SS, does a good job on homework, and is respectful in class. Maybe taking notes isn't helpful to him and his style of learning?
  • Alex's locker is messy. I gave him lunch detention after he cleaned out his locker and told him how important organization is (Alex told us that the girls had been complaining about the condition of his locker). I told Mr. E. that Alex has always been disorganized, and as his mother, I can assure him that eating lunch in the office will not change his organizational habits. We've bought every locker storage gadget and binder outfit found in stores and it makes no difference. Our family is more concerned with his behavior at school and the amount of effort he puts into his studies. 
  • J, a boy with Asperger's Syndrome, said an inappropriate phrase in class. Alex was sitting next to him. Girl G was sitting next to Alex on the other side and asked what the boy had said. Alex repeated it and G went to the office to report the incident to the principal. J and Alex both were in trouble. Alex shouldn't repeat things J says. So my son is in trouble because the girl knew the boy said something inappropriate, asked Alex to repeat it (the phrase the boy used was 'using the back door') and after Alex repeated it to the girl per her request, she asked Alex if that 'means what I think it means?' and he told her 'yes.' Could you and your snoopervisors possibly waste any more of our time? What is the intention of the snoopervisors who tattle about such nonsense? Is a life in jeopardy? Is the school on fire? Or do they derive pleasure from getting someone into trouble and the principal supports this effort? 
There was an incident with another girl, H, who had attended the same school with Alex since kindergarten. She began telling Alex that he was gay or bi-sexual - she wasn't sure which (he had shared with a couple of classmates that he isn't interested in dating a girl until he is much older) and that she had made a point to tell everyone she came into contact with. He was absolutely crushed and no matter how much he told her it was all a lie, she just increased her effort with joy. I knew that her parents would be extremely upset if they knew about the situation yet Alex begged me to not call and talk to her mother. He was afraid the situation would be made worse. By this point both the seventh and eighth grade troublemakers had joined her effort. I told Alex that I would let him try to handle it himself if he agreed to follow my advice to the letter. He went to school the next day and told her that if he heard one more word, even a whisper of the lies she had been spreading about him, he would pay a visit to our Pastor and call for a meeting with him, the principal, her parents and Alex's parents. The incident died an immediate death and her comment to Alex was that she was "just kidding."

Just in April, he came home and as the evening progressed it was clear that his irritability was increasing. He refused to talk about what was bothering him until I pressed and the boy visibly unraveled. He was inconsolable and his source of irritation was directed at F. and G. and their cronies. F. had told him that day that if he "died, I hope no one goes to your funeral" and "If you were missing, there wouldn't be a search party." Alex also talked on and on about how everyone, including teachers and the principal, hates him at school. He knew he wasn't going to survive at the Catholic high school we had just registered him for. The kids there hated him as well, and that was evidenced by the kids on the track team he was part of. He had clearly lost all objectivity because I knew this just was not the case. He was doing well in every aspect of his life outside of school. All adults who come into contact with him tell me how polite and well-rounded he his. He is frequently requested to serve at special Masses at our parish, his Scoutmaster has great respect for him and he will soon be elected to the national honor society for Boy Scouts, the Order of the Arrow. Even the receptionist at the orthodontist office commented that Alex was so pleasant and how we must be so proud of him. We had never once received any comment from any teacher or the principal about Alex misbehaving in school. At this point the puzzle was coming together, but a major piece was yet to be assembled. Mrs. D was yet to be revealed as the real class bully.

Monday, August 15, 2011

My Summer

It may come as a surprise to many of you that I have not fallen from the face of the earth.  For new readers, WELCOME!  I have not posted since April and will try to explain my absence for those of you who may have noticed.  Here goes:

April and high school track season blended into summer kayaking, camping, Boy Scout events and family visits.  This was also impacted by the imploding of the motherboard on our PC, anticipation of quadrupling of school tuition next year (as our son moves on to high school), the head gasket needing replacement on my car with nearly 180k miles on it, looking for part time work which enables me to both help financially and still be Mom and a varied assortment of other things that come not in threes, but threes squared.  Needless to say, but of course I will anyway, the blog was put on the back burner for months.  Thankfully, we already had a mini laptop that can substitute for the desktop computer in a limited way until we can have the necessary repairs made.

I am currently reading The Closing of the Muslim Mind which is an amazing book that is sure to completely change the view of Islam to all who read it and recently finished Jimmy Akin's The Fathers Know Best.  RCIA is gearing up for a new year and our parish has a lot of exciting things happening, yet I hope to make more regular contributions to the blog once again.  I hope this entry finds you well.  If you have prayer requests or wish to contact me either leave a comment or mail me at catholicponderings(at)yahoo.com.  May God bless you!

Thursday, March 3, 2011

Time to Catch Up

After having scared off regular readers of +Ponderings+ following my long absence, I still feel the need to share what has been going on with me and what you may have missed in the news about our Church.

Me:  I am not one to share much information about myself, not so much out of concern for privacy, but it just goes against the hub of my personality.  On a celebratory note, our family is no longer under the yoke of pay television.  We had the satellite dish disconnected and don't even have an antenna for broadcast television.  We don't miss the junk that came into our home on a daily basis and have discovered some wonderful films and television programs on Netflix.  Out with the Viagra commercials, in with "The Bells of Saint Mary's" and "A Man for all Seasons".

There are two things that have occupied much of my mind and the first I wish to share is this:  Our son who is in 7th grade came home with a permission slip for us to sign last night.  It was for a seminar to be held at our local community college this month with the main theme of tackling bullying.  The program is only for junior high students from all of the local schools and seems quite benign.  He shared that they will have a speaker and then can choose different programs to attend.  Then I found at the bottom a list of sponsors of the 2011 conference - YMCA, our local drug and alcohol abuse council, the college, other similar community organizations and at the tail end of the list was  PLANNED PARENTHOOD.  My reaction was not very contained when I read it and thankfully our son looked at me knowingly and asked, "What?  You saw Planned Parenthood is on the form?"  This was just last night and for fear of losing your interest so soon, I'll cut the details and get to the bottom line.  By 8 a.m. I already had e-mailed the school principal with my concerns and sent Alex to school without the permission slip and written a letter to the editor of the local paper.  After dropping by the school this morning and speaking with the principal about the issue, I drove past our local PP office and stared at the beautiful brick-faced and tastefully trimmed old building, feeling entirely ineffective and helpless. It was almost as if the building was mocking me.

Second, the all-time most popular post on +Ponderings+ is about end of life care.  Find my December 2009 post about how our family is currently facing difficult decisions HERE.  I just updated the entry.

CLICK HERE TO VIEW ALL +PONDERINGS ABOUT END OF LIFE CARE

Wednesday, December 9, 2009

End of Life Care Decisions: More Gray Than Black and White


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Months ago, I shared a personal situation with our readers which faces millions of Americans everyday and certainly billions around the world -- caring for an elderly loved one.  Some years ago, my grandmother was completing a health care proxy and decided to list me as the primary person to make health care decisions should she be unable to speak for herself.  She was afraid that if given the opportunity, other family members would keep her hooked up to machines indefinitely though there was no chance of recovery.  My husband and I also filled out health care proxies many years ago, and at the time, my understanding of the proxy was rather black and white.  I thought only of a situation where I was hooked up to a respirator with no brain activity or another similar grave condition.  Being a  health care proxy in New York state, and likely other states as well, is much more than that.  Since my grandmother became a resident in the local nursing home, the shades of gray in my responsibility have brought more questions than answers. 

My grandmother has had six difficult months since her admission including severe anxiety attacks, falls from trying to get up in the night though she cannot walk, skin tears, hospitalization for iron deficiency and dehydration, occasional dips in oxygen levels, constant confusion which places her in a dream-like state within a bubble of reality and a perceived loneliness though family visits her every day.  As her health care proxy, I receive a call for everything.  My aunt has her power of attorney yet neither she nor her three sisters have a say about health care matters.  I find myself on-edge every time the phone rings in the evening, or God forbid, the middle of the night.  It is my honor to see to the physical well-being of my dear grandmother, a woman who was really more like a mother to me.  It is also much more stressful than I could have ever imagined.

After her hospital stay, Grandma's doctor contacted me and asked me to see the social worker at the nursing home.  He wanted me to sign an advanced care directive - a document which breaks down every aspect of a person's care and check the appropriate boxes  - yes or no.  It was decision time and my grandmother was not receiving any extraordinary medical support.  There were no intravenous fluids, no respirator -- no machines I thought about when I heard the words health care proxy.  The decisions required of me in those moments standing at the nurses station (all while my grandmother was being comforted by someone because she was crying uncontrollably about a situation which did not exist in reality) were gut-wrenching.  How far would we go to treat any future health problems?  Would she have x-rays?  Would she have blood work?  Would we give her intravenous fluids?  Would we give her artificial nutrition?  Would we hospitalize her?  Would she have surgery?  Would she be given antibiotics if her medical condition required them to get better?

As a family, we agreed to keep her comfortable.  We also agreed not to put her through tests which would cause great stress - CT scans, MRIs and the like.  The Church instructions about hydration and nutrition are spelled out for people in a vegetative state or facing imminent death, but what about someone who is in fairly good health considering her advanced age and vascular dementia?  She does not remember to ask for a drink, though at times she is thirsty.  She also thinks that since there is a top on her cup they offer her that the drink is not water but some sort of gel.  She will tap at the top of her cup and say, "See.  This is awful.  It's some sort of gel they put in there."  Yes, she can speak that clearly.  Do we force her to drink in order that she stay hydrated?  We offer her soda, juice, milkshakes, etc. and someone brings her treats nearly every day. My aunt even bought her water bottles and the nursing home made a space in their refrigerator so that she can have her own bottles of water.    We prompt her to eat, and the food they serve is quite good, but her appetite is 1/4 of what it was just months ago.  She thinks they serve the same food everyday, though their menu is clearly varied. 

The doctor has indicated that her health is slowly winding down.  Her kidney function has been low for about a year now.  With her spotty eating habits, her iron level is likely to diminish once again.  I pray every day for her - and for me - that I make decisions in regard to her care that reflect God's will.  Making this even more difficult is the fact that only one of her four daughters has any faith at all.

While studying Church teaching and placing that guideline alongside the situation my grandmother currently faces, I find there are no clear answers.  One must extrapolate which statements apply to a personal situation and hope the Holy Spirit speaks in the heart when time for the next decision comes.  Fluids and nutrition, even artificial nutrition, are to be used if the person is to live indefinitely.  If the fluid and nutrition causes stress on organs or systems of a dying person, they may be discontinued.  If death is imminent, hydration and nutrition can be stopped if it will not hasten death.  What constitutes dying?   Who decides if the hydration and nutrition measures cause stress or not?  Dealing with nurses, social workers and doctors who are secularized makes it very difficult to know whose best interest they have in mind.  I did the best I could in making choices on the document I filled out.  I was assured by the social worker that this only is to serve as a guide to the floor nurses and is not 'written in stone'.

I feel so ill-equipped for this awesome responsibility.  Pray for me and my dear grandmother.
_________________________________

UPDATE:  March 2011  

In the autumn of 2010, I received a call from the nursing home at 6:30 a.m. and the nurse told me that my grandmother had fallen sometime in the night but appeared be uninjured.  At this point, she had lost nearly 70 lbs. since she was admitted and lost any cushion she had on her bottom.  They believed that she had awakened to use the bathroom and made it no further than the linoleum floor next to her bed.  Since she became a resident at the nursing home, she has never been able to understand how to use the call button and had fallen several times.  A few days later, during a visit with family members, she told them her hip hurt horribly.  They called the ambulance and had her taken to the emergency room for x-rays and sure enough, her hip was broken.  I raced to the emergency room and found her to be terribly anxious and she kept trying to roll onto the broken hip instead of away from it.  They had given her something for the pain and we had to wait for the surgeon to come and discuss with us the options - more difficult decisions needed to be made.  He indicated two options:  she could have surgery or go back to the nursing home that night.  He said that the pain would be the same in intensity and duration with or without the surgery.  She never was going to walk again with either option and up to this point could only walk with two-person assist and her walker for a very short distance.  She had become as comfortable as she could possibly be with her surroundings at the nursing home and had grown attached to some of the aids and nurses.  We knew what surgery would mean for her - extreme stress of being moved to yet another environment surrounded by strangers, frightening sounds and discomfort and the possibility of complications due to the surgery.  We took her back to the nursing home, praying and hoping that we made the best decision for her.

After a couple of weeks passed, she no longer complained about hip pain and started trying to squirm out of her chair and get up.  No form of restraint is legal in the state of New York - even if it means a patient or nursing home resident falls onto the floor.  The best they can do is to place soft mats on the floor around the person. She continues to struggle with extreme anxiety which is unpredictable and washes over her in waves. We were concerned a few months back about the need to change medication so that she wasn't so tortured with delusions.  She can all at the same time know who you are, understand where she is, yet think that someone she loves has died or was kidnapped.  A meeting was arranged with the Psychologist, Physician and team that helps to care for her so that the family could share concerns and ask questions.  The Psychologist told the Physician that the meds he had prescribed were an outdated means to treat the elderly and that something else would most likely work better.  He also noted that they had listed in her paperwork that we wanted her to receive only comfort care.  Well, comfort care means something quite specific to those in the medical field and something quite vague to most lay persons.  Comfort care, at least in our state, means no treatment of any chronic problem.  No blood pressure medication, no thyroid medication, no anything except for what gives comfort to the patient, ie: tylenol, lip balm on sore lips, etc.  This had not been our wishes at all!  The Psychologist was shocked that she was still receiving the meds that she was with 'comfort care' marked in her binder.  We wanted her comfortable, but to us, that meant to keep her alive as well!  We did not want to hasten her death by withholding something that was simple to administer and was by no means extraordinary.  Soooo... we amended the orders to clearly indicate our intentions for her care.

While visiting with her two days ago, she told me she just feels like mud.  I told her that sometimes we all feel like mud and that's okay.  God made the mud, too, and if it is good enough for Him...

We continue to suffer watching her suffer this living purgatory and enjoy brief glimpses of when she is fairly coherent, funny and reminiscing about times long since past.

UPDATE: October 2011 - New Post HERE
Resources:

Will to Live - Everyone should have one!