Showing posts with label prenatal testing. Show all posts
Showing posts with label prenatal testing. Show all posts

Thursday, March 24, 2011

Children: Begotten, Not Made

Over the past week, I have been strongly conflicted while reading the book Inconceivable.  It is about a Catholic couple who struggled with secondary fertility issues since their first child was born and turned to science in order that they may have more children.  Since men are fallible, a medical error resulted in the mother's pregnancy with a child who was not genetically hers.



On one hand, I was deeply saddened while reading what Carolyn and Sean Savage went through.  Their pain from having dreams of a large family dashed could not prepare them for the pain that was yet to come.  Carrying a child and subsequently falling in love with the boy, all while knowing that the child was to go to his genetic parents upon delivery is for most of us unimaginable.  On top of this, Carolyn had health complications and was putting herself at risk by carrying this child and giving him the gift of life.  As Carolyn noted in the book, she could legally kill the child through abortion, yet would have to give the child to his biological parents upon birth if she chose in favor of life.  Though I personally have not and would never  choose to use In Vitro Fertilization to expand my family, I can feel so much pain while reading the words of both Sean and Carolyn.  They desperately longed to do what was right for their family.  Their plans for a large family resulted in two healthy sons and two miscarriages before they decided to choose IVF to offer them hope for a larger family.  They are blessed to have a daughter who was conceived through IVF and in an attempt to further add to their family, once again underwent the implantation of three lives - embryos -which had been preserved frozen at a fertility clinic.  This is where the real nightmare began.

On the other hand, and this is where the conflict rises, they knew what the Church teaches about IVF and decided that the Church was wrong and that they were right.  They perceived a certain 'discrimination' against people who could no physically get pregnant without resorting to IVF procedures.  A look at Sacred Scripture shows that Carolyn and Sean were not alone in their longing for children.  There are perhaps dozens of instances of infertile couples struggling emotionally in the Bible.

In the Old Testament Elkanah says to his wife who was unable to conceive, "Hannah, why do you weep? And why do you not eat? And why is your heart so sad? Am I not more to you than ten sons?" Of course Elkanah's wife loved him, but she wanted to bear their child. Source

I do not wish to hurt the Savages any more than they have been hurt.  It is they who put this story into a book and over the air waves into our living rooms, so I do feel I have some sort of implicit permission to give my own perspective on their deeply personal story.


It is my hope that they will read these comments and take them with the love and concern they are intended:
  • Children are begotten, not made. 
  • Gifts are to be freely given and accepted - but never forced.  
  • You are deeply in love with a boy who is not genetically yours, and could have been as well with an adopted child.  
  • The Church does not discriminate against you because of your infertility; to the contrary her members want to help you carry the burden of the cross.
  • You made an extreme error in judgement just as everyone does.  Begin anew and put aside your anger with Church teaching. Prayerfully discern why the Church says that IVF is morally unacceptable.
  • Isaac was the only son for Abraham and Sarah, yet through his obedience, Abraham was willing to sacrifice his only son for God. 
  • Put yourself at the foot of the cross during this Lenten season and consider Mary, with her only beloved Son, knowing that he was destined to die upon a cross in order that all of humanity may be saved.  She too carried a child knowing heartbreak would be inevitable.
  • Further encouragement of others to seek IVF not only leads yourself to further separation from God through mortal sin, it also brings others to the same destination. 
  • Having children through 'any means necessary' serves yourself and your needs, disregarding God's will
  • Gestational Carrier is a horrid term and one the Savages used when they decided to have their remaining embryos transferred to another woman in further efforts to expand their family.
  • We all sin and sometimes it is with the best of intentions.  If we are off the mark according to Church teaching, it is best to further investigate where we are wrong - not the Church.
  • Catechism of the Catholic Church: 2378 A child is not something owed to one, but is a gift. The "supreme gift of marriage" is a human person. A child may not be considered a piece of property, an idea to which an alleged "right to a child" would lead. In this area, only the child possesses genuine rights: the right "to be the fruit of the specific act of the conjugal love of his parents," and "the right to be respected as a person from the moment of his conception."

EDITED 3-31-11:  A link to this blog entry was posted on the Savage's Facebook page and a storm followed.  I temporarily removed the previous bullet points, but after having read and re-read the comments made by Mrs. Savage and others, have since returned them where they were initially. There is no delicate way to tell someone that they did something wrong and to suggest alternatives.  Certainly that is the case where someone has been through difficult trauma such as Mrs. Savage experienced.  One additional note:  If a priest comments that he does not support the Church's position on IVF, one should not feel justified as many a priest has also supported gay marriage, artificial contraception, fornication, female ordination and numerous other topics against Church teaching.  No one has stated that a child brought into the world via IVF is any less precious than any other child.  It is not the child, but the means that the parents used to become pregnant that is a serious matter.  Does that mean you think a child born out of wedlock is somehow inferior?  Nonsense.  Please read the information contained in the links at the end of the entry as I have added more.
From their Facebook page (not including comments made by other individuals though some are quite interesting): 
 "It is articles like this that leave me shaking in my chair. Off to take a deep breath and say a prayer for guidance. C"
"I know...it just hurts. I feel like the doctrine is so shortsighted and discriminatory. And, I can't count the number of priests who have whispered to us...."I don't really agree w/the church on this issue!", but are so deathly afraid to speak up and urge the hierachy to reconsider. C"
"[facebook fan], So sorry this upset you so! I just keep torchering myself and rereading it. My goodness, to say that we should have adopted....to say that she would never personally choose IVF...I find it so interesting when people are quick to say what they would or wouldn't do when they have never been in a certain situation. It seems so arrogant."
"I love my church. My next blog post is about my relationship with our parish. A few Sundays ago I sat in my pew and admired all of the families that had gathered for worship. Funny thing about it was...there were many there that have IVF children. They've just never been publicly 'outed' (or chastized). It's really, really hard to reconcile right now. C"
"Interesting thing about the [Catholic Ponderings] author. I think if the church changed it's mind, she'd change her mind. She is a devoted follower. I'm not always a fan of devoted "followers". Instead, I love to read articles, blogs, and published works written by "inspired ponderers". Critical thought, prayerful reflection and the recognition of the dangers of arrogance are probably a more accurate reflection of Jesus' loving approach to mankind. I often wonder what Jesus would say about the Church of our world. My guess is, he'd be shaking his head in disappointment. C"
Inconceivable was, as mentioned, a difficult read.  It was well-crafted, alternating between Sean's perspective and that of Carolyn's, seamlessly taking you through a very painful time in their lives.  I was brought to tears over and over as the waves of painful news mounted against this loving couple who were trying to cope with unimaginable circumstances. A little boy and a family were blessed with life and yet another family was left to cope with incredible emptiness and despair at what they had hoped could have been.  +

*To read more about the Savage family or to order the book, visit their website HERE.  

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For further information on Church teaching in regard to infertility treatments and IVF consult the following:

In Vitro Fertilization: Ethical Implications and Alternatives 

Catechism of the Catholic Church






NaPro Technology:  Moral and Better than IVF

In Virto Fertilization and the Hermeneutic of the Gift  by Christopher West

U.K. article: New fertility legislation will make it illegal to use embryos with a known genetic abnormality in IVF treatment

Read THIS powerful story. Yet another situation where a family is changed forever due to an IVF implantation.  This time, the mother was implanted with three fertilized eggs and found herself pregnant with triplets. Read this agonizing tale as told by the father, sharing what it was like to watch his children die in utero on a monitor after his wife insisted on aborting two of the children. 



Monday, January 12, 2009

On Prenatal Testing - Share This Entry With a Friend


This letter was sent to ZENIT in regard to a recent article on prenatal testing:

A little over eight years ago, my niece heard these words from a woman, "I will not bring this child into the world." The woman was not an expectant mother, she was my niece's OB/GYN. At five months into her pregnancy, an ultrasound revealed my niece's child had no apparent brain matter. A subsequent ultrasound revealed that her son had an encephelocele and that the build up of spinal fluid had squished his brain to the top of his head making the brain itself undetectable on a regular ultrasound. Many experts advised termination of the pregnancy.

My niece and her husband decided to bring their little boy into the world even if it meant just a few precious moments with their little son or if it meant a lifetime of constant care. They had to find a neonatologist, a new delivery doctor and even a new pediatrician who would agree to care for their son with his special needs. Three months later, my niece gave birth to her second child. He was taken that week into surgery where they implanted a VP shunt to drain the excess spinal fluid to allow room for his brain. They were told their son probably would not see, hear, talk or walk.

Today, this young boy attends second grade, is preparing to make his first communion, sees and comments on the beauty that surrounds him, asks his grandma to play the piano for him, is surprisingly articulate and is able to walk. While he has occasional seizures, he is a thriving little person deserving of care. Ultimately, he is a child of God, deserving of the special place in this world that God intended for him.

I guess my point is, prenatal testing is very worthwhile when it helps to prepare doctors and parents to help the child in need of help, but it can be very harmful and seductive when "experts" become the judge and jury of such a child and use it as a means to determine which children should live and which children they refuse to bring into the world.

Thanks and God bless you!

Catherine Lemek

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And to share another more tragic outcome, I submit to you a fellow blogger's account:

When I came back, I had a wait (of course), and the radiologist came in to do the scan herself. About 15 minutes later she flipped the lights back on and dropped a bomb. A big bomb. Congenital Heart Defect. What they had seen earlier, but couldn't tell me without having an M.D. confirm it was that the baby's heart is asymmetrical. The left ventricle is not growing.

They let me call B's office (I'd left my cell in the car), I just told his boss to send him home without giving any specifics (although considering I was crying, he probably didn't need them), and they called a genetic counselor down to talk to me. She dropped another bomb. The disease is nearly always fatal. After taking a family history as far back as I could provide, she said she sees nothing to indicate that this is genetic, or could have been expected, and no indication that it would be expected to happen again. It is a fluke, a random happenstance.

I came home to a frantic B, of course, and just collapsed in his arms while he begged me to talk to him and tell him what was the matter. He, of course, sat me down in front of a computer, he sat down in front of another, and we both started researching. I'll save you the trouble.

"one of the most complex cardiac defects seen in the newborn and remains probably the most challenging to manage of all congenital heart defects... without treatment... uniformly fatal, often within the first hours or days of life" - Cincinnati Children's

and later, after meeting with the Cardiologist:

The pediatric cardiologist spent almost 2 hours examining the heart of our baby boy. From the beginning, it was evident that it was not a healthy heart. Only 3 of the 4 chambers were pumping blood. The other chamber looked like a knot of scar tissue. B could tell almost from the first picture that it wasn't right, but we both were hoping that the defect would be something that our child could live with.

It isn't.

The doctor laid out our choices and the odds the baby would survive with the necessary surgeries. Even though the odds were better than we thought, our baby would still lead a life of sickness and pain.

Until the third surgery, our son would not be getting enough oxygen. His developing brain would be starved of the fuel it needed to function properly. Three years. It would be three years before he would get the oxygen he needed to be healthy. Who knows what damage that would cause?
Their decision? Death for the child by labor induction.

And if you wish to see the pictures the mother posted of her beautiful and perfect baby following his forced birth and subsequent death, click here. We would have loved to have welcomed the little boy into our home. His little heart beat for three hours and eight minutes.